Patient associations play a vital role, work tirelessly to promote patient needs, embracing their perspectives, and fostering collaborative dialogue among stakeholders on local, national, and global scales.
We are committed to support, strengthen and amplify the voice of patients worldwide by actively supporting several Patient Associations in their advocacy activities.
We do so in a transparent way, communicating our donations on a regular basis, in line with article 4.6 of Farmindustria Code of Conduct.
Here below is a comprehensive disclosure of Patient Associations supported by Chiesi Farmaceutici S.p.A. in 2022.
Disclosure of the list of Patient Associations supported by Chiesi Farmaceutici S.p.A., in 2022, according to article 4.6 of Farmindustria Code of Conduct.
| Association Name | Venue | Contribution Description |
Value (€) |
|---|---|---|---|
| European Patients’ Forum | Belgium | Donation | 25000 |
| A.I.A.F. Onlus (Associazione Italiana Anderson-Fabry) | Italy | Donation | 15000 |
| Cystinosis Support Network Europe | Ireland | Donation | 20000 |
| IMP International Mito-Patients | Netherlands | Donation | 15000 |
| EURORDIS | France | Donation | 30000 |
| FUNDACJA KOALICJA DLA WCZEŚNIAKA | Poland | Donation | 32000 |
| UNIONE TRAPIANTATI POLMONE PD - ODV | Italy | Donation | 25000 |
| Amoke SCD Ltd ( Aka Amoke Foundation) | Belgium | Donation | 7000 |
| EFA (European Federation of Allergy and Airways Diseases Patients’ Association) | Belgium | Sponsorship | 167786 |
| The European Idiopathic Pulmonary Fibrosis and Related Disorders Federation (EU-IPFF) | Belgium | Sponsorship | 20700 |
| European Foundation for the Care of Newborn Infants | Germany | Sponsorship | 40000 |
| FIN (Fabry International Network) | Belgium | Sponsorship | 12170 |
| EURORDIS | France | Sponsorship | 70000 |
| Rare disease research partners | United Kindom | Service Agreement | 24100 |
| Make a Wish Foundation | Italy | Sponsorship | 50000 |
| Rare disease research partners | United Kindom | Service Agreement | 20250 |
| Rare disease research partners | United Kindom | Service Agreement | 39450 |
| FederAsma e Allergie – Federazione Italiana Pazienti ODV | Italy | Service Agreement | 2000 |
| Associazione Respiriamo Insieme - APS | Italy | Service Agreement | 1500 |
| IBD Relief Ltd | United Kingdom | Service Agreement | 1800 |
| European Society for Organ Transplantation - Steunstichting ESOT | Netherlands | Sponsorship | 65000 |
| European Society for Organ Transplantation - Steunstichting ESOT | Netherlands | Sponsorship | 1500 |